Feeling great!
Still some minor GVHD issues, but the steroids are working on that.
Had a bone marrow biopsy yesterday, I’ll be excited to see the results in a few days.
Even the Tech that did the procedure said he noticed an improvement in samples of what he pulled. That sounds very encouraging.
Tuesday, October 22, 2019
Thursday, October 17, 2019
Day +85
All is well!
Platelets dropped again so I got a fresh bag on Wednesday. Doctors are not concerned.
The prednisone (steroids) and sodium supplement is causing some water buffalo type fluid retention. Liver labs are coming back to normal, so hopefully they will back from on the steroids.
Attempting to manage that with hydrochlorothiazide and staying active. No need to turn into a baluga whale.
Platelets dropped again so I got a fresh bag on Wednesday. Doctors are not concerned.
The prednisone (steroids) and sodium supplement is causing some water buffalo type fluid retention. Liver labs are coming back to normal, so hopefully they will back from on the steroids.
Attempting to manage that with hydrochlorothiazide and staying active. No need to turn into a baluga whale.
Saturday, October 12, 2019
Day +80
Another awesome day / week!
Blood labs looked great, but platelets are low. Doctor’s are not concerned. It could still be a small GVHD battle going on, (graft vs host, those old Joe cells are not going without a fight)
Could be some chemo still in my system, or a small infection . Since the count is below 50, I’m a fall risk, but I’m constantly under supervision.
The good news, my hemoglobin counts are in double digits, which haven’t been there in at least a year or more.
Taking it easy, and focusing on healing both physically and mentally.
Ahhh, just relax and listen to the chagrin river.
Blood labs looked great, but platelets are low. Doctor’s are not concerned. It could still be a small GVHD battle going on, (graft vs host, those old Joe cells are not going without a fight)
Could be some chemo still in my system, or a small infection . Since the count is below 50, I’m a fall risk, but I’m constantly under supervision.
The good news, my hemoglobin counts are in double digits, which haven’t been there in at least a year or more.
Taking it easy, and focusing on healing both physically and mentally.
Ahhh, just relax and listen to the chagrin river.
Monday, October 7, 2019
Day +75
Doing well and feeling much,much,much better!
Blood levels bounced back to expected levels and the Mayo visits are short and sweet now.
Had a CT scan last week on my sinuses, just to check a pre-transplant issue. Haven’t heard anything back. All my other tests last week came back normal, no issues.
Due to the GVHD bouts , they put me on some strong steroids. They are really messing with me, and hopefully they will back down the dose or stop them. They make me jittery, and I have a hard time staying asleep, even though I take them in the morning and early afternoon. ( an occasional ‘roid rage over stupid things too.)
Working out and I just keep moving every day to try to keep my muscles relaxed.
Go cells go!
Blood levels bounced back to expected levels and the Mayo visits are short and sweet now.
Had a CT scan last week on my sinuses, just to check a pre-transplant issue. Haven’t heard anything back. All my other tests last week came back normal, no issues.
Due to the GVHD bouts , they put me on some strong steroids. They are really messing with me, and hopefully they will back down the dose or stop them. They make me jittery, and I have a hard time staying asleep, even though I take them in the morning and early afternoon. ( an occasional ‘roid rage over stupid things too.)
Working out and I just keep moving every day to try to keep my muscles relaxed.
Go cells go!
Friday, October 4, 2019
Day +70
Ugh... not a good week.
GVHD (graph versus host disease) reared it’s ugly head . Gastrointestinal issues, coughing, nausea. Not much more but when my belly aches, I’m a whiny little bitch. They said this would happen, but you know me, “ not to me it won’t!”.
Yesterday, had to deal with a bag of platelets, a liver ultrasound, chest X-ray, and scoping and biopsy of upper and lower tracks. ( my most favorite part was having to give my self enimas) luckily they knock you out for that biopsy procedure . Last thing I heard was “let’s give him another dose”. Woke up and they were done.
Everything was fine. They found minor stuff. But nothing to be concerned about. Still waiting on the liver and chest X-ray results, not due back until Sunday,
I feel great today!
GVHD (graph versus host disease) reared it’s ugly head . Gastrointestinal issues, coughing, nausea. Not much more but when my belly aches, I’m a whiny little bitch. They said this would happen, but you know me, “ not to me it won’t!”.
Yesterday, had to deal with a bag of platelets, a liver ultrasound, chest X-ray, and scoping and biopsy of upper and lower tracks. ( my most favorite part was having to give my self enimas) luckily they knock you out for that biopsy procedure . Last thing I heard was “let’s give him another dose”. Woke up and they were done.
Everything was fine. They found minor stuff. But nothing to be concerned about. Still waiting on the liver and chest X-ray results, not due back until Sunday,
I feel great today!
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