Day +66

ugh, another set back.
Platelet level dropped again. If it gets to 10 or below, I’ll need a transfusion
Since it’s below 50, I’m considered a fall risk. ( There’s a risk of bleeding out if I bruise or cut myself).
So needless to say, I’m in lockdown, and being closely watched.

Apparently there is Bulsulfin (chemo drug) still in my system, and the doctors know that this is the issue. They said this happens to 80% of transplant patients around the 30 to 60 day range.

Got into a bit of a funk the last couple of days,  but my caregiver helped me snap out of it!
Plus, I have my therapy dogs!

Day +62

All is well!
Minor set back today as my platelet count took a nose dive by about 20 points
Doctors were not at all concerned, it’s a common occurrence , but I was still a bit frustrated.
It could be that I’m fighting a virus. ( Cesar was sick a couple days, I’ve been out and about at soccer games, so who knows where I picked it up.)
I’m already on an anti-viral med, so hopefully they will just increase that.

Received some great results on my chimerism analysis.
(Chimerism Testing for Engraftment Analysis. Chimerism testing (engraftment analysis) is performed for patients who have received a hematopoietic stem cell transplant.)

 The CD3-positive fraction contains approximately 80% donor DNA and approximately 20% recipient DNA. 
CD33-positive myeloid cells:  The CD33-positive fraction contains approximately 100% donor DNA and approximately 0% recipient DNA.

I’m almost 100% donor DNA, with no graph vs host rejection so far.

Day +56

Feeling great,. No issues to report.
Blood labs were excellent on Tuesday, so much so, that they cancelled my Friday visit.
Now I’m down to once a week visits to Mayo.

Well,  I may have been a little too ambitious  about going back to work half days. My care giver thought otherwise and I was denied. She wants me to wait at least until the end of September.

Perhaps she’s right.

Day +50!

All is well! Can’t believe it’s day 50!
No major issues to report, still battling the potassium thing but we changed graph vs host rejection meds so hopefully that fixes it. Blood counts were up as well, they tend to bounce around, but the higher number are encouraging.
Still have no hair. Depending on the person, it could be 3 or 4 months before I start seeing any noticeable growth. Oh well, I guess that’s what hats are for.
Finally able to go watch Cesar play soccer this weekend. (Night and early morning games)
As long as I stay out of the sun, I’m good. ( no prolonged exposure)

Day +46

Feeling great!
Not much to report.
I can return to work, half days at first, and only working from home. Looking forward to it, (yes), as it will also be good therapy!

Check it, I finished the Stranger Things s one was a real finger cramper!

Day +42

All is well!
Apologies for the lack of updates, but there isn’t really anything to report.
The twice a week Mayo visits are going well, just need to watch my potassium intake for a bit. (I’m getting switched to a new rejection med which should help.)
Blood labs are bouncing around but they say that’s normal.

Day+60 will be this month and I’ll go to 1 visit a week.

Eating well, drinking plenty and working out more which is good.

Day +100 will be Nov 1st!

Then there’s the hair thing. Haven’t had much growth, in fact it seemed like it was still falling out a bit. Could be 2-3 months before I start getting it back.