Happy Holidays!
It’s kind of been a real shitty last few weeks. The GVHD battle still rages on.
Gastrointestinal issues, rashes on my chest and back, and just general fatigue.
I’m pushing through it, as it’s all part of the process. I hate taking more meds than I need to, but I gave in and started taking the OxyCodone for the pain in my gut. Man what a relief. Not only for me, but for the people around me!
The good news, my blood labs are looking great and my hair is growing back!
It’s a marathon, and I’m still plodding along.
Tuesday, December 24, 2019
Wednesday, December 11, 2019
Day +140
Bleh...Not a good week and a half.
Another GVHD flare up. This time hitting my eyes, as well as my GI tract.
It’s getting better but still not feeling 100%.
I’ve lost about 15 lbs from this last battle. It’s not like I’m not eating, but apparently just not eating enough. It’s not a diet plan I’d recommend. Going back to multiple high calorie meals to see if that helps.
The good news is that all my blood labs are looking good.!
Another GVHD flare up. This time hitting my eyes, as well as my GI tract.
It’s getting better but still not feeling 100%.
I’ve lost about 15 lbs from this last battle. It’s not like I’m not eating, but apparently just not eating enough. It’s not a diet plan I’d recommend. Going back to multiple high calorie meals to see if that helps.
The good news is that all my blood labs are looking good.!
Wednesday, December 4, 2019
Day +133
Yuck
Perhaps I spoke too soon. Started to get what I thought were graph versus host symptoms over the weekend (gastrointestinal issues, dry / red eyes, sore throat, weight loss, fatigue)
Turns out it may be a virus, and Mayo is running some tests.
Had to bump up the steroids a bit (.5mg), got a prescription for my dry eyes, and maybe something for the stomach irritation. This sucks. It's like 5 steps forward - 3 steps back.
The good news, ( which makes the doctors think it's not GVHD) , is that all my labs are on the up and up.
Sucks not having a working immune system!
It didn't stop me from getting Xmas light up. ( no ladder climbing of course)
Perhaps I spoke too soon. Started to get what I thought were graph versus host symptoms over the weekend (gastrointestinal issues, dry / red eyes, sore throat, weight loss, fatigue)
Turns out it may be a virus, and Mayo is running some tests.
Had to bump up the steroids a bit (.5mg), got a prescription for my dry eyes, and maybe something for the stomach irritation. This sucks. It's like 5 steps forward - 3 steps back.
The good news, ( which makes the doctors think it's not GVHD) , is that all my labs are on the up and up.
Sucks not having a working immune system!
It didn't stop me from getting Xmas light up. ( no ladder climbing of course)
Sunday, December 1, 2019
Day +130
All is well!
Triple lumen portal has been removed, and platelet counts are slowly increasing.
Now it’s just weekly labs, Dr. follow ups and other tests.
Still need to avoid crowds, watch what I eat and just be generally careful about not exposing myself to germs! Not sure when I’ll ever get off of the handful of meds I’m taking.
Unless any setbacks occur, I’m thinking about ending this blog soon.
Triple lumen portal has been removed, and platelet counts are slowly increasing.
Now it’s just weekly labs, Dr. follow ups and other tests.
Still need to avoid crowds, watch what I eat and just be generally careful about not exposing myself to germs! Not sure when I’ll ever get off of the handful of meds I’m taking.
Unless any setbacks occur, I’m thinking about ending this blog soon.
Subscribe to:
Posts (Atom)