Day +116

Doing great! Just waiting for these platelets to bounce back. Last lab results on Tuesday  did show they were on the rise. (They were at 30 on Tuesday up from 16, still a fall risk) All other lab results look good.
Since all is on the up and up, I’m finally getting my three lumen power port removed on Wednesday. I’ll get a bag of platelets before the procedure.  I’ve had this thing on me since July! I don’t really notice it any more except for having to cover it before jumping in the shower, and the weekly dressing changes / line flushes.

Now it’s just routine labs, and visits with the primary care doctor. Another pulmonary function test in a couple weeks. Still on a handful of meds every day. Probably will be for awhile, until my immune system comes back.

Day +107

Doing well!👍
Blood labs (metabolic panel & CBC) are looking great. Platelets are slowly coming up, but since they are still under 50, I’m still a fall and bleeding risk. So I can’t do my usual risky behavior!
The slow recovery could now be the scarring in the bone marrow, which will go away in about a year or so. Think about it as a rock garden, can’t really grow anything there, but my body is trying.

Hemoglobin at 11.6! (Normal range is 13.2 - 16.6. ) Cant wait to be normal! ( insert your own joke here 😁)

Still on 2 visits a week at mayo, while they monitor. Mostly for labs, talk to the doctor, and dressing changes for the power port.
Energy is great, and I’m back down to my fighting weight. 💪

Marathon no where near over, but feeling great at the current pace!

Day + 101

Yep 101 days!
All is well. 

Dr Palmer found out that an anti-fungal med was causing the thrombocytopenia. (Eating my platelets).
There’s only a 10% chance that the med would do that(voriconazole), and apparently I fell into that 10%. (BTW I don’t have fungus, it’s just to prevent any fungal infection. What’s funny is I used to take Fluconozole, the same stuff my doggos take for their valley fever.)

Still battling some GVHD symptoms, but nothing major. Platelets  are now on the rise, and hemoglobin (red cells, are in double digits!)

 No extra Salt now, and steroids have been decreased so I’m not feeling or looking like a bull walrus,
The natural diaretic I’m taking is working great (Uva Uris leaf, Dandelion leaf, ginkgo, horse chestnut and Hawthorne Berry). Ya, it makes me pee a lot but it’s better than the alternative.
Daily excersize helps with that and the occasional “roid rage”. The kids just look at me and laugh and say, “uh oh, he’s raging again”

I should be getting my multi-luman  power port out soon, as soon as my platelets stabilize.
My hair is coming back too! Not sure what color yet,  Lauri is waiting for the blonde hair and blues eyes.