Saturday, November 2, 2019

Day + 101

Yep 101 days!
All is well. 

Dr Palmer found out that an anti-fungal med was causing the thrombocytopenia. (Eating my platelets).
There’s only a 10% chance that the med would do that(voriconazole), and apparently I fell into that 10%. (BTW I don’t have fungus, it’s just to prevent any fungal infection. What’s funny is I used to take Fluconozole, the same stuff my doggos take for their valley fever.)

Still battling some GVHD symptoms, but nothing major. Platelets  are now on the rise, and hemoglobin (red cells, are in double digits!)

 No extra Salt now, and steroids have been decreased so I’m not feeling or looking like a bull walrus,
The natural diaretic I’m taking is working great (Uva Uris leaf, Dandelion leaf, ginkgo, horse chestnut and Hawthorne Berry). Ya, it makes me pee a lot but it’s better than the alternative.
Daily excersize helps with that and the occasional “roid rage”. The kids just look at me and laugh and say, “uh oh, he’s raging again”

I should be getting my multi-luman  power port out soon, as soon as my platelets stabilize.
My hair is coming back too! Not sure what color yet,  Lauri is waiting for the blonde hair and blues eyes.








3 comments:

Unknown said...

Lauri is going to have a loonngg wait. GCG. hugs. M

JoAnn said...

Thanks for the update. Glad they figured out what was eating your platelets. You sound good. Keep up the good work. - Peace Love

Diane said...

I look everyday for any new updates. Sounds like things are going great. Keep it ip