The GVHD gastrointestinal issues, and skin rashes have subsided for now. Unfortunately it took a bump in steroids to tame it. Of course with that comes the anxiety and “roid” rage, but staying active, meditation, and homeopathic alternatives seem to help. 😎
A new twist is what the GVHD and prolonged use of steroids is doing to my eyes. Besides the little ulcers in the inside of my lids, they are also not producing adequate tears to keep my eyes properly hydrated. It’s impacting my vision for near and far, plus making them sensitive to bright lights, and air movement. They had to place little plugs in my tear drainage ducts to keep what I do produce in my eyes. Very odd.
Definitely can’t drive, or look at a computer screen for long periods of time. Not fun. You should see me now with my dark motorcycle glasses, and mask when I go places. Quite frightening.
My appetite is back, so I’m eating better, and I’m more active, but I’m still down almost 30 lbs.
Trying to stay as fit as I can without over doing it. (I often get yelled at for trying to do too much!)
At the start, they give you this 100 day milestone and warn ya about what side effects potentially could happen. I thought I was past it it , but apparently not! It’s a marathon, and I’m gonna finish this!
I’m in a good place right now, mentally and physically. Very grateful for all those involved in my care.
3 comments:
I see a little bit of your older brother in this picture. Keep up the good work!
So glad you are feeling better Joe...looking good! Sounds like you had a ruff holiday season, as did I! No fun feeling crappy with all the goodies around.
I'm back at work this week half days. Nice to start feeling like myself again. Hope you get back soon as well...we all miss you!
Stay strong...thinking of you!
cheers~
Good job bro. Glad your feeling better. You are going to win this marathon. Hugs.
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